Friday, June 27, 2008

Wilms Tumor, Day Three

I spent the night here by myself - only one parent per night, in the Pediatric Intensive Care Unit (PICU). I sent The Wife home - The Boy can't have solids until his stomach wakes up, so let's let her sleep in an actual bed until her unique skills (no matter how hard I work, I'll never breastfeed the baby) are needed. The night was perfectly fine - I slept for one three hour chunk from 10:30 to 1:35, and another 1.5 hour chunk from 3:30 to 5:00. During the latter chunk, he pulled the stomach tube out of his nose - no mean feat, because it was firmly taped & glued to the side of his face.

Stubbornness runs in the family.

His IV port in his hand is out, which gives back his sucking thumb - even though he hasn't found it yet. The breathing tube is out of his nose, and the stomach tube will come out within the next 24 hours. He's sleeping, mostly - morphine shots every few hours, plus th surgery after-effects, are seeing to that. He's as comfortable as he can be for the moment - he wakes every ten minutes and screams a bit, then falls back asleep. I've spent a lot of time tonight holding his hand and his cheeks to soothe him.

He ran a slightly higher-than-normal temperature for a while, but Tylenol brought it down. He's like me - doesn't run fevers, so any high temperature is worrisome. It's over, he's back to normal temperature by 2:30AM.

Best news? He's starting to move himself around a little bit. Not much - just rotating his body about 30 degrees in either direction. But, it's a start.

Keep them prayers coming, people. And, those that have offered help... please don't be surprised when I accept. The next couple of months are going to be extremely difficult.

1 comment:

Babyandme said...

Praying for David and your family! Hope Day four and the rest of the days go by really fast and according to doctor's expectations.