Friday, August 15, 2008

Strange Days

Every once in a while, I get hit with some mild insomnia. It's part of being human, I guess. Everyone gets it from time to time: nap a little too long in the afternoon, or have a cup of regular coffee after dinner, or sleep an extra couple of hours in the morning, and things get a little bit dicey around bedtime. A couple of years ago, I slept about ten hours in a week, which was really bad. This wasn't so bad: Wednesday night, I was asleep around 4AM, and last night I was up until after 4AM as well.

Last night wasn't necessarily my choice. I'm in the process of finishing up my second pedagogy class - mathematics and pedagogy. I have been working on my last asignment for a couple of days - a lesson plan on using the program "The Geometer's Sketchpad" to draw some polygons and transform them (reflect, rotate & translate). The Wife went to bed around 10:30 or 11:00 last night, figuring that I was going to stay up and finish my work (which was the intention). The Boy was in bed, asleep - the 10 o'clock changing went smoothly and easily. At 11:30PM, he woke up screaming.

To make a long story short, he was awake until 4:30.

Basically, here's how things went: we would snuggle for a little bit, watch some tv (usually the Giffen iPod connector, which plays my iPod on tv) until The Boy fell asleep. When he had been asleep for ten or fifteen minutes, I'd move him - successfully, I might add - into his crib or into bed with my wife. After five minutes, he'd wake up and start screaming again.

By screaming, I mean yelling, crying and carrying on. It was actually kind of scary. He fell asleep at 4:30 and stayed asleep until 6:00, when he woke up again. I stayed awake with him until 4:00, when I traded "duties" with The Wife. She stayed awake with him until I got out of bed around 10 o'clock. Well, they joined me for a nap around 8:30 or 9:00.

We called the Valerie Fund Center to speak with one of the nurses, because they told us to call when we had questions and problems. They told us, basically, that as long as there was no fever (there WAS no fever), we were okay. The vincristine can cause jaw and leg pain, which is likely what it was. We were told that, if it happened again, we could take his temperature and, assuming the temperature was normal, give him some baby Tylenol.

...which we did, later this afternoon, when he was frantically screaming and thrashing and carrying on. This afternoon was also quite a bit scary, as nothing was working to help him feel better. Carrying him around, offering him some nursing, playing games, singing songs - nothing worked. Finally, we gave him some Tylenol and I took him for a walk around the block. When we got home, he slept for three hours.

So, it's likely that he won't get to sleep at a "normal" baby time tonight. That's okay. I just don't want him to be in pain anymore.

Look, I'm not complaining. Going back to our lexicon of terms, we're pretty lucky in the severity of side effects of The Boy's chemo. I know that there are an awful lot worse effects that people suffer, and I know that there are kids that are way worse off than The Boy. I understand that we've been lucky. It's just frustrating that I have to hold him and listen to him scream.

1 comment:

Shay said...

Holding your crying baby and knowing you can't fix it is the worst.