It's been an... interesting week, if by interesting one means mind-bogglingly awful and life-altering. Suffice it to say that many, many big changes are in store for my family and me over the next 8 or 9 months, one way or another.
The Boy is fine. Not great, but fine. He was supposed to start chemo on Thursday, but he didn't. His platelet levels are too low. They checked again today because his counts have had a tendency to suddenly jump huge numbers, but getting from 73 to 100 in one day is a little too much to ask. So, we're looking at a Monday admittance for chemo. That's frustrating, because Grandma & Grandpa are here from Pittsburgh because Grandpa has business in New York City over the weekend.
Updating a couple of dangling plot threads: The audiologist that examined The Boy was mistaken in quite a few areas. The doctors WILL adjust his chemotherapy to try to minimize further hearing damage, and they WILL fit him with corrective hearing aids when necessary and adjust them as necessary instead of waiting. That's a good thing. That doesn't change the rest of it - that he hears like a 40-year old man and that his hearing is likely to deteriorate further.
We've discovered several children in The Boy's same treatment plan that have ended treatment, generally around a year after treatment began, because their counts just stopped regenerating. We're not at that point with The Boy yet, although we will note that he's been on a 4-week chemo cycle instead of a 3-week chemo cycle since June or July. Some of that was due to the effects of the staph infections in his first port, but all of the chemos since August have been on 4-week rotations as well. On one hand, I'd love to stop chemo because I'm tired of pumping my baby full of chemicals that damage his growth, hearing, limbs, and development. On the other hand, I'd really love to have a baby living with us rather than dead of cancer. Gripping hand, the doctors have lead us well, up through this point.
We'll see what happens. Have no fear, gentle reader: you will be kept informed. I need this outlet, to express my feelings and thoughts as we progress further through The Boy's treatments. We're in a really down and depressed state at this point, but I again will count my blessings: I have a great wife, and we have wonderful friends and gorgeous babies.